Develop a database of affected African Americans and other minority individuals in the greater Cleveland/Akron area is critical to monitor the prevalence, improve support, encourage communication and education.
Gather information from community and faith-based organizations that serve African Americans and other minorities will shed light on access to care, availability of services and compliance.
The outreach and education activities will prove to provide additional information, which may be useful to for diagnosis and treatment and substantiation for research numbers.
